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sometimes it’s really scary, being with a partner who has a life threatening condition at such a young age. one that’s got all doctors worried, and no one’s been able to tell us what exactly’s caused the problem so far. it just is what it is. and that’s terrifying. i try to live day to day not worrying. but sometimes (like days his chest is tight), it’s really impossible to not think about the what ifs. i didn’t think i’d ever be in such a situation. this really heavy stuff has no place in my little fairy tale fantasy. it’s really hard to get past this phase of hoping and believing in the best, yet worrying the odds may not actually be in your favour.

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